Welcome to a collection of powerful stories, insights, and advocacy pieces from my work as Editor and contributor to the ALS Association Blog.
Through these blogs, I have had the privilege of amplifying the voices of people living with ALS, their caregivers, researchers, and advocates—shedding light on the challenges they face, the progress being made, and the unwavering strength of the ALS community.
I invite you to explore these stories, learn more about the ALS community, and join the conversation. Because every story has the power to spark change.
The Woody Family, Living with ALS
Lamar and Kristina Woody and their young daughter, Natalie, navigate life and ALS, focusing on family, positivity, and sharing their story to raise awareness about living with ALS and its challenges.
Chris Spaulding: Fighting Back Against Insurance Denials
For Chris, the journey to accessing critical medication sheds light on the obstacles many in the ALS community face and serves as a beacon of hope for those in similar situations.
Developing AI to Detect and Diagnose ALS Sooner
Artificial intelligence (AI) is becoming increasingly embedded in our everyday lives, often in ways we aren’t even aware of. Could we possibly harness its power to end ALS?
Ken Paves: My Mother Was My Everything
Celebrity hairdresser and beauty expert, Ken Paves, shares his amazing story about life, love, and caring for his beautiful mother, Helen, who lost her battle with ALS.
Warm Summer Night, a Moment the Vickers Family will Never Forget
The Vickers family, living with ALS and sharing their beautiful memories and storytelling through music, rhythm, and melody.
Finding Hope and New Treatments Through Clinical Trials
Dr. Merit Cudkowicz shares her thoughts about the clinical trial landscape and why she has hope for the future.
Cliff and Brooke Eby: A Caregiver Story
Cliff and Brooke Eby talk about caregiving and life with ALS, finding joy and humor as they navigate their daily challenges with the disease.
Katie Adams: Fighting for Change for Everyone with ALS
Katie is a young single mother of two, living with ALS, and using the power of her story to fight for change for herself and the entire ALS community.
Julie Niehoff 